20 Aug Monday Mantra- Wake up every morning with a smile on your face and say, "One more day"
Meet my nephew Jordan, he is 8 years old and is a shining example of how unpredictable life can be. Jordan’s story began when he began having headaches
The following weeks he underwent exhaustive testing, cat scans and MRI’s, Jordan was diagnosed with a Brainstem Glioma (tumor) inside the pons section of his brain and it was spreading….quickly. This tumor is inoperable because of its location so he underwent 33 radiation treatments. His regression was fast, losing mobility, and being confined to a wheel chair. Even after all this he still talked about playing hockey, roller blading with his uncle Scottie and walking his dog.
The last month his family moved everything and lived in the Ronald McDonald house in NYC to take part in a trial procedure that was our only hope. Jordan is a pioneer in pediatric cancer research. Only 12 to 18 children will be accepted into the trial, the goal is to make it standard therapy for this type of cancer. The trial will bring renewed hope to a cancer that is 30 years behind in its medical research because it is so rare. The therapy has the potential to create a whole new paradigm in brain tumor treatment.
Jordan was so brave in wanting to help the doctors find a cure for this cancer. His procedure proved that it was safe and the research will be what’s valuable. But in the end the tumor is spreading at an alarming rate….Jordan will not win this fight.Life truly is unpredictable so wake up everyday and celebrate your life. It is about living.
One more day.
Update: At 8:45 this morning, Monday August 20, 2012, Jordan passed away in the arms of his mother and father. Rest sweet Jordan.